#MillionsMissing – A positive followup – A new family, a new team. I feel strangely positive today. After an exhausting day blogging, posting, tweeting and retweeting about MillionsMissing I feel part of a new family, part of a team. I’m a relatively new member of that family having become ill with #ME and #PoTS at… Read More MillionsMissing – A positive followup – A new family, a new team.
My frustration #MillionsMissing – 12th May – MEawareness Day Today is a frustrating day for many with ME/CFS. It’s a day when we all want to shout from the rooftops, beg for more understanding from family, friends, employers and plead with governments for more investment into research into our illnesses. And yet the overiding symptom… Read More #MillionsMissing – 12th May – MEawareness Day – FRUSTRATION
What did you take for granted before living with ME/CFS? I’m asking the question ‘What did you take for granted before living with ME/CFS?’ because it’s a subject I’ve been thinking a lot about this week. Why this week? Because I’ve been refused an ‘invalidity pension’ here in France where I’ve lived for 12… Read More What did you take for granted before living with ME/CFS?
One year on – Living with MECFS Let me start by saying that of course I realise that there are millions out there who’ve suffered from MECFS for years and even decades. In relation to them I still feel very much a newbie, but here I am today marking the negative anniversary that it… Read More One year on – Living with MECFS
How do you describe living with MECFS to friends and family? Well this really is a tricky one. We’ve all been through the difficulty of trying to describe the symptoms and what daily life is like to get an ME/CFS diagnosis from the medical establishment, but how describing living with MECFS to friends and family?… Read More Describing living with MECFS to friends and family
My Story – Arriving at an MECFS diagnosis – Everyone’s arrival at an MECFS diagnosis must be different. Here’s mine…Part 1 I can tell you exactly the moment I became ill. No, mine wasn’t after a virus or other illness (unusually). I was driving. I can see in my head the exact part of… Read More My Story – Arriving at an MECFS diagnosis – Part 1
Hello World – Living with MECFS in France Well this is it. The traditional title to this first post is ‘Hello World’ as it really does feel like a new beginning. I’ve created a new place where I can have a voice, where I can speak freely about how it feels to live with MECFS here in… Read More Living with MECFS in France