Living with MECFS in France - Invisible ME 7 comments
Hello World – Living with MECFS in France   Well this is it. The traditional title to this first post is ‘Hello World’ as it really does feel like a new beginning. I’ve created a new place where I can have a voice, where I can speak freely about how it feels to […]

Living with MECFS in France


What can't you do living with ME/CFS?
What did you take for granted before living with ME/CFS?   I’m asking the question ‘What did you take for granted before living with ME/CFS?’ because it’s a subject I’ve been thinking a lot about this week. Why this week? Because I’ve been refused an ‘invalidity pension’ here in France […]

What did you take for granted before living with ME/CFS?


One year on - Living with ME/CFS in France
One year on – Living with MECFS   Let me start by saying that of course I realise that there are millions out there who’ve suffered from MECFS for years and even decades. In relation to them I still feel very much a newbie, but here I am today marking […]

One year on – Living with MECFS



living with MECFS to friends and family - Invisible ME France
How do you describe living with MECFS to friends and family? Well this really is a tricky one. We’ve all been through the difficulty of trying to describe the symptoms and what daily life is like to get an ME/CFS diagnosis from the medical establishment, but how describing living with […]

Describing living with MECFS to friends and family


invisible-me-france-me-cfs
My Story – Arriving at an MECFS diagnosis – Everyone’s arrival at an MECFS diagnosis must be different. Here’s mine…Part 1   I can tell you exactly the moment I became ill. No, mine wasn’t after a virus or other illness (unusually). I was driving. I can see in my […]

My Story – Arriving at an MECFS diagnosis – Part ...